Tuesday, June 30, 2009

OK .....Warning I am going to CUSSS....

Dammit Dammit Dammit. We went back to paralysis again. His pressures are just too high when he really wakes up. He even opened his eyes at us. I sang to him and he calmed for a minute but started back up, daddy talked to him and he calmed for a minute....then back up and didn't come back down until they put him under....no more moving and grooving for him for another few days. They are going to pull the lines that are measuring the heart, the one in the left Dr Del nido wants to go ahead and take it out, it isn't meant to be there for long periods and we can see what is going on by the pulmonary line that will still be there. (this is the line that was pulled out twice today and works half the time) They will also do another Echo to see what the heart looks like after the wake up time we had, make sure function has not changed.

Todd and I are heavy hearted once again. We know this is the way it is, the way it has to be. We dont want any harm to our precious boy...but we cant help but feel dissapointment and sadness.

4 comments:

My name is Sarah said...

This is Joyce. Cuss all you want, this is the worst part. I so remember those tiny steps forward and giant steps back. A few deep breaths, a good cry and chocolate always helped me. Please know you are in our thoughts and prayers.

Tina Barrett said...

del Nido had Anna's lines pulled so the nurses couldn't worry about her CVP presures and in time they came down nicely. Baby steps, even though they are fustrating. We're praying hard for Mr. Tucker!

Cammie Heflin said...

I'll join you, that just sucks! Poor baby, I'm sure you are so frustrated! Hopefully he will get that little body under control soon!

Carey said...

Hang in there. It will happen. Keep the faith!