Dammit Dammit Dammit. We went back to paralysis again. His pressures are just too high when he really wakes up. He even opened his eyes at us. I sang to him and he calmed for a minute but started back up, daddy talked to him and he calmed for a minute....then back up and didn't come back down until they put him under....no more moving and grooving for him for another few days. They are going to pull the lines that are measuring the heart, the one in the left Dr Del nido wants to go ahead and take it out, it isn't meant to be there for long periods and we can see what is going on by the pulmonary line that will still be there. (this is the line that was pulled out twice today and works half the time) They will also do another Echo to see what the heart looks like after the wake up time we had, make sure function has not changed.
Todd and I are heavy hearted once again. We know this is the way it is, the way it has to be. We dont want any harm to our precious boy...but we cant help but feel dissapointment and sadness.
Love You Forever
2 months ago