Wanted to post last night but was unable, in my mind, to leave our room. I found a parent giving Motrin to a child last night and HELLO we dont need whatever it is they are giving it for....so we stayed in our room and played with Hot wheels all night.
Tuck did SO good yesterday with the 8 hours of walking from appointment to appoinntment. We left our room at 7, which is 6 KC time, and didnt get back until 4pm. Nothing really to report because all the "heart" testing is being done today. The echo, surprise surprise, was unable to be done yesterday as Tucker would not cooperate. So they will do that while he is under today as well.
Today at 930 we are to be at the hospital for MRI, Echo and heart cath. The heart cath will take about 3 hours. During that time they will be in close contact with Dr Del nido to ensure all pictures he needs are taken before they are done. If there is something that they havent taken then they will at that time. I should be talking to all the doctors, well our cardiologist and Dr Del nido anyway after the tests to see what we have. Everything is set up for the surgery to go ahead on Thursday so far...unless they find something surprising that they are not anticipating.
The cough Tucker started on Friday is still there....of course I got asked all day about it. There is no fever or any other signs of illness so I dont think it will stop anything. He ate non stop when we got to the room last night but the drinking is still not very good. Also we have a diaper rash once again, after 6 poopy diapers who wouldnt right. SO, I have to hit CVS before our appointments and plaster his bottom.
I guess I will go and post later tonight. We are overnight so I dont know if I will be able to get to a computer but I will make sure someone updates the results. Thank you EVERYONE for the prayers and keeping tabs. We love you all......
1 week ago