We have had a few bad nights since our return home. Tucker is waking up several times, with blood curdling screams. He has finally broke through a tooth on the bottom right side and we believe that to be the reason, or most of it. The other part is adjusting to no one coming in at all hours poking, listening and interrupting his sleep. He is used to it and now he interrupts his own sleep. We still cant lay him down without him waking up and crying....a few more days and that should be broke also. I have started some spoon feeds again. He loved his banana's yesterday. We have him off his oxygen and just watch his saturations all day, so far so good after day two without any. This great big oxygen tank we had delivered and now we don't need it-hopefully it stays that way. Anyway, we are adjusting to being home again. Getting a routine back into place and enjoying "our time."
2 comments:
Anonymous
said...
I Karen and family, I hope you remember me, Lisa's niece, Maggie.I have been logging on to your website for several weeks now and keeping updated on the little man's progress, seems to be doing great. He has a smile and a heart of an angel. I am trying to get a group together to do the walk at Arrowhead in August, so hopefully I will see you out there. God Bless the 4 of you and you are in my prayers.
Every time I close my eyes I say a little prayer. Doctors’, nurses with my son Please take great care, For as you see his little heart Is in need of grave repair.
Bless my son to have the strength, This battle he will win. For as he fights for his life, We are on our knees again.
This son of ours, our miracle, Has gone through so much. He is our gift from above, Our lives he has touched.
Every time I close my eyes I say a little prayer. Thank you God for this boy, A son all our own. And oh how grateful we are now, To see how he has grown.
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2 comments:
I Karen and family, I hope you remember me, Lisa's niece, Maggie.I have been logging on to your website for several weeks now and keeping updated on the little man's progress, seems to be doing great. He has a smile and a heart of an angel. I am trying to get a group together to do the walk at Arrowhead in August, so hopefully I will see you out there. God Bless the 4 of you and you are in my prayers.
I say briefly: Best! Useful information. Good job guys.
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