Today we had a "sedated" echo. Sedated, HA HA HA, Tucker laughs at the terminology. We had his ativan, his methadone and a full dose of clorahydrate and he was out for 45 minutes total. Luckily they didnt waste any time at all getting to what they needed to see and check. Everything was great. LV, left ventricle, is same size as the right now and the pressures are great. Still have a little leak in the mitro valve but nothing worth mentioning (they say anyway). SOOOO.....we might get to approach the "home" word soon. Still have a lot to come off of and we sooo need to poop. He weighed more today and was bigger in the tummy again, we have been eating by mouth now for a few days, so all of that is on top of what was already in there. So PLEASE pray for poop. He is miserable, gagging and I cannot even get enough room in there for him to drink his fluids due to "no space" in that big belly.
Just talked to nurse, enema #3 for the week coming right up. Man, I hope this knocks out whatever it is that is blocking him. There is so much coming from the top now, like prune juice, miralax, and two others that we should be good at some point in there....there must be something between the mush and the "exit area" that is blocking it all. (what a life, where it revolves around poop--but it is very important. It effects everything with Tucker, oxygen because he doesn't take deep breathes, eating, lungs....everything.)
Birthday Number Twelve
5 weeks ago