Tucker went the whole night without the bipap mask and did great. He was up a few times coughing, but that is to be expected. He has to clear all the junk in his lungs from wearing the mask and being on the ventilator. He can clear it o.k., but how do you tell a 3 year old to spit it out? So, his xray was a little wet, but the doctors were not to worried. They said to do lots of chest physical therapy and suctioning to get rid of all that junk. If he is still wet tonight, we may have to wear the mask again.
Beth is our nurse again today, so she really knows and likes Tucker. She has been really working hard to get that chest junk loose and out.
Physical Therapy came by and we worked on walking, sitting on the edge of the bed and kicking and standing up from a sitting position. He is still weak in the legs, but he did really well. I think they underestimate him because of the downs. When he does everything I ask him to, they were really impressed. Tucker is such an amazing boy, he will be back to his self before you know it. He will be running me all around the place with his oxygen saturation's at 100 percent instead of 75 to 80.
After Physical Therapy left, Brian came by and played music on his guitar and sang a few songs. Tucker loves music and was wanting to strum Brian's guitar. He let him strum a few chords while he was singing. Tucker just watched him and even started singing the "Itsy Bitsy Spider".
1 week ago